I've been surfing around Story Corps and found some audio clips by and about people living with genetic illness. Some of us have shared these stories with students and colleagues in Narrative Medicine classes and workshops. Listen carefully:
12-year-old Joshua Littman, who has Asperger's syndrome, interviews his mother, Sarah and asks her such things as “Have you ever lied to me?” and "Did I live up to your expectations?"
http://www.storycorps.net/
Thom and Karen Horsey remember their daughter, Liddy, who had Cornelia de Lange Syndrome. Liddy died from an illness unrelated to CdLS.
“Liddy did things on her own schedule...”
http://www.storycorps.net/
“How did you feel when I was born?”
15-year-old Mary Warm, who has Down syndrome, to her father, David.
http://www.storycorps.net/
Barbara Cooper (L) tells her mother, Jody Houston (R), about living with a form of the rare genetic condition, Progeria.
“It's a premature aging disorder...” "I did everything I ever wanted to do."
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